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Thursday, August 14 • 1:30pm - 2:45pm
SESSION 207 - Partners in Practice: Archivists and Researchers Collaboratively Improving Access to Health Collections

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Whether privacy is legally mandated (as with HIPAA), governed by institutional, state, or federal records schedules, or applied per local practice, all repositories maintain records that pose challenges to access. Drawing on the experiences of two archivists who manage the grant-funded processing of public health collections, and in partnership with two historians who are experienced in the use of patient records, the speakers address the barriers to researcher use of health information and propose researcher-driven solutions.

Gustainis: Processing Collections with Protected Information: A Comparison of HIPAA and Non-HIPAA Covered Entities
Letocha: How Privacy Aware Descriptive Practices Can Promote Access and Use of Protected Information
Warner: Why Patient Records Matter to the Historian

Speakers
avatar for Emily R. Novak Gustainis

Emily R. Novak Gustainis

Head, Collections Services, Center for the History of Medicine, Harvard Medical School
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Susan Lawrence

Associate Professor of History, The Ohio State University
Susan C. Lawrence is a historian of medicine who has been distracted from her work on the history of medical education and human dissection to write a book, tentatively titled Privacy and the Past: History, Research, Ethics. Inspired by the effect of HIPAA on access to historical medical records, she has been examining the effects of regulatory law and biomedical models of ethics on historical research, especially as concepts of "privacy... Read More →
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Phoebe Letocha

Collections Management Archivist, Johns Hopkins Medical Institutions
Phoebe Evans Letocha is Collections Management Archivist at the Alan Mason Chesney Medical Archives, Johns Hopkins Medical Institutions, which is the institutional repository for the Johns Hopkins Hospital and the schools of medicine, nursing, and public health at the Johns Hopkins University. She oversees the preservation and processing of institutional records and collections of personal papers, still photographs, and moving images. Recent... Read More →
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John Warner

Avalon Professor of the History of Medicine, Yale University School of Medicine
John Harley Warner is Avalon Professor and Chair of History of Medicine at the Yale University School of Medicine, and at Yale he is also Professor of History, American Studies, and the Program in the History of Science and Medicine. He received his Ph.D. in 1984 from Harvard University (History of Science), and from 1984-1986 was a Postdoctoral Fellow at the Wellcome Institute for the History of Medicine in London. In 1986 he joined the faculty... Read More →


Thursday August 14, 2014 1:30pm - 2:45pm
Virginia AB [Lobby Level] Marriott Wardman Park, 2660 Woodley Road NW, Washington, DC 20008